The Swedish Cystic Fibrosis Association

 

The Swedish Cystic Fibrosis Association (RfCF) was founded in 1969. The mission of the association is

• to promote the interests and welfare of people with cystic fibrosis or immotile cilia syndrome in Sweden

• to work for high quality care

• to promote public awareness of cystic fibrosis and immotile cilia syndrome

• to raise funds for research and education of the medical profession.

In Sweden there are about 575 known persons with cystic fibrosis and about 100 with immotile cilia syndrome. Approx 80% of the persons with CF and 50% of those with immotile cilia syndrome are members of the Swedish CF Association, which totally has about 2000 members.

Address to the Swedish Cystic Fibrosis Association is:

Kålsängsgränd 10 D,

SE-753 19 Uppsala.
Tel +46 18 15 16 22, fax +46 18 12 70 74, e-mail info@rfcf.se.

Links:
The board of the Swedish Cystic Fibrosis Association
Information about Immotile Cilia Syndrome
CF European Network

CF centers in Sweden:
Stockholms CF Center, Huddinge University Hospital,

SE-141 86 STOCKHOLM,
+46 8 585 800 00.

Uppsala CF Center, Akademiska University Hospital,

SE-751 85 UPPSALA,
+46 18 611 00 00, e-mail cystisk.fibros.barnsjukhuset@ped.uas.lul.se.

West Sweden CF Centre, Dept of Pediatrics, The Queen Silvia´s Children Hospital/SU Östra,

SE-416 85 GOTHENBURG,

+46 31 343 40 00, e-mail vastsv.cf@vgregion.se.

Lund CF Centre, Dept of Pediatrics, Dept of Respiratory Medicine, University Hospital,
SE-221 85 LUND,

+46 46 17 10 00.